Centering Voices: Best Practices for Engaging People with Lived Experience (PWLE) in Supportive Care in Cancer

As supportive cancer care continues to evolve, the meaningful engagement of people with lived experience (PWLE) is essential across every dimension of the system—from care delivery and service design to research, policy, and global frameworks. This MASCC webinar explores best practices for embedding PWLE in ways that are authentic and impactful—not merely symbolic—strengthening advocacy, advancing equity, and shaping more compassionate, effective, and people-centered systems.

  • Describe the advocacy ecosystem and the diverse roles of people with lived experience across clinical, community, research, and policy domains.
  • Identify practical actions that clinicians and researchers can take to avoid tokenism and foster authentic co-creation with lived experience advocates.
  • Apply practical strategies to build meaningful, collaborative relationships with lived experience advocates that influence care delivery, research, and policy.
  • Examine the WHO Framework on Meaningful Engagement and its application to supportive cancer care and systems-level transformation.

Session Chair: Dr Maryam Lustberg

Presenters: Stacey Tinianov, MPH (Advocates for Collaborative Education) & Carolyn Taylor (Global Focus on Cancer)

This webinar was made possible by the MASCC Survivorship Study Group.

Course Details

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Webinar
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